Our power was restored at 2:30 a.m. today. Last night we showered at Ken and Kathy’s house. Kathy graciously performed a mini allo-cleaning in her master bath and set out hotel soaps and shampoos for us – all very welcoming and luxurious. Jeff said the shower was so fancy he couldn’t figure out how to turn it on. He tried to instruct me before it was my turn. And Kathy showed me how to use all the special squirty things and rain showerhead but once I got in there, I forgot completely about the extras and took a regular-old shower. Ken and Kathy also took some of our frozen foods to store in their freezer. We learned their lockbox keypad number so we can get our food when we need it but we could actually sneak in and try out that fancy shower another time!
Jeff was happy to see Nurse Galina yesterday morning. The home infusion nurses usually call the night before their visits to give their ETA. Without electricity, though, our landline (VOI) wasn’t working. We tried calling their number from our cell phones but we got a recording saying, “We are experiencing unusually high call volume. Unless you are having an emergency, call back later.” Galina guessed the problem, of course, and came without having reached us by phone.
Jeff has high blood pressure readings fairly regularly and has a flaky face and body. He spends what he considers a lot of time with his “product” or “lotions and potions” in the morning. Sometimes he calls his GVHD medicine and moisturizers his “make-up.”
I emailed the transplant coordinator, Jackie, to ask whether Jeff could enjoy – or at least try – grilled food for the Labor Day weekend since Day 100 is Sunday. She said “yes!” Oh, boy!
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