Thursday, July 16, 2015

Our First Gift of Lift Drive Yields a Match!


We got the most exciting news from Gift of Life today by email:












“Dear Gift of Life Volunteer,
On Jun 14, 2014 you helped facilitate a donor drive in Hamilton at NJ YMCA Staff Training Day Drive. We are thrilled to inform you that a donor recruited at that drive has been identified as a match for a 65 year old woman battling Acute Myelogenous Leukemia.” 

Jeff remembers giving a rousing short speech to the crowd and then walking around with Rosie in his arms, telling his story to the young camp counselors and encouraging them to swab their cheeks.  Theresa helped us that day along with Donor Frank and Gift of Life Staffer, Nick.  More about that day:

http://jeffs-journey.blogspot.com/2014_06_01_archive.html 

Jeff is proud that we had a success only one year after our very first drive and I'm shedding a few tears whenever I think about the families who are preparing for donation and transplant.  We're thinking, of course, about Nicole, too.  We're feeling blessed to be a part of the Gift of Life process.

Friday, July 10, 2015

Role Reversals



In nearly 36 years of marriage I have relied on my even-keeled husband on many occasions.  He remains calm under almost any circumstance (even when faced with disease, as we have seen).  While scatterbrained Amy flits about trying to solve a problem - finding a lost item, for example – Jeff’s logical brain goes to work towards a quick and painless solution.  I have Jeff’s Chemo Brain to thank for my becoming the saner, more rational partner.  Case in point: 

I was paying bills at the dining room table when Jeff asked me to submit an online rebate. He read the pertinent numbers off of a Home Depot sales receipt and said that he had another rebate to submit but he couldn’t find the receipt.  I went back to paying bills and figured he’d bring the other receipt when he got it out of his truck or wherever he had left it.

Head bent to my task, I became aware that Jeff was walking around and around and around the house.  Eventually he began to grumble, “Where could it be?” and “What did I do with it?” and “Darn it!”  I sensed he needed help and asked what was missing.

“The receipt!” he growled.  “It was with another rebate form and a drill bit!  I don’t know what I did with them.” 

My did-you-look suggestions were answered with frustrated responses, all “Yes” or “Yes, twice!”  There was nothing to do but leave the bills and join the search.

Tracing his likely steps for the day, including spots little Rosie might have secreted away the papers and drill bit, were fruitless.  We spent much too long in the effort – the garage, the bedroom, the shop, the bathrooms, the kitchen, Rosie’s play kitchen, the back porch, every surface in every room.  Nothing.  We gave up and decided a nice walk might help ease the loss and restore sanity.  

One step out the front door and I noticed a white cylinder of wind-wisped paper in the driveway.  “What’s that?” I asked.

Jeff marched across the driveway and caught the thing.  “It’s the receipt!”

He stared at it as if the thing had, of its own volition, got up from the kitchen table and slipped out the front door.  And then truth and clarity arrived.  “I left it on the roof of the car.”

Now, everyone, including Jeff, knows that the roof of the car is not a very good place to perch things, even temporarily.  So this, too, was out of character for him.  He remembered needing both hands to extract Rosie from her car seat and, well…

I glanced up and down the street and saw another piece of paper in front of our neighbor’s house.  I went to investigate.  The rebate form!  Our calming walk became a Drill Bit Hunt.  We retraced the path of the car around the corner, down Mercer Avenue to Bridge Street.  We walked awhile down Bridge Street and then back home.  We found two paint stirrers which Jeff now remembered were among the missing items but no drill bit.

“The rebates will pay for the cost of the lost drill bit,” Jeff rationalized.

I watched Jeff relax – finally.  “I think we’ve had a role reversal,” I said, feeling pleased that I did not allow his panic to take me along.  We had a good laugh and that was that.

Jeff saw Dr. Porter last week and had good numbers, including immunoglobulins, again!  Dr. Porter asked Jeff if he is able to work.  Jeff was surprised by the question and didn’t remember Dr. Porter asking it since maybe the first year post-transplant.  When Jeff related this conversation to me I said, “Why didn’t he ask you that back when they cut off your Social Security disability?”  At that time he was not working as regularly as he is able to work now. 

Of course, we are glad Jeff is working and, more importantly, that he is feeling very well.  In quiet moments Dr. Porter’s question rattles around in my head and disconcerts me.  Why, after four years of steady improvement, has he asked this question?  Can’t he tell from the four panels of blood work that are done every two or three months that all is well?  Nothing looks - at least to my untrained eye – as if it is trending too high or too low.  Then I convince myself that it was a benign question and is not any kind of omen.  Geez!  Maybe Jeff is the saner one of us after all.